Initiative for quality improvement and epidemiology in children and adolescents with diabetes
Diabetes is a burden for both patients and their parents who need to receive a specific education to properly manage the disease. Beside vascular complications, diabetes in youth is also linked with higher risk of diabetic ketoacidosis, severe episodes of hypoglycemia and comorbidity. Therefore management of diabetes in young patients should cover periodic assessment, attentive monitoring for glycemic control and screening of vascular complication and comorbidity. In Belgium, specific centres are recognized by the INAMI-RIZIV for the treatment of diabetes in youth. Through regular data collections, the IQECAD project monitors quality of care in these centres and provides individualised feedback , helping the centres to improve their quality of care. The project is executed by Sciensano and governed by a group of national experts.
Overview
- Alternative Titles / Acronym
-
- IQECAD
- Keywords
-
Epidemiology audit-feedback diabetes care quality of healthcare Adolescents Children Diabetes quiality improvement
- Languages
- FRA, NLD
- Health Categories
-
Population-based health data registries (public health registries) Data from medical registries and mortality registries Electronic Health Records (EHRs) Data on professional status, specialisation and institution of health professionals involved in the treatment of a natural person
- Population Coverage
- Periodically, recognized centres are invited to participate in the IQECAD audit. Centres are required to retrospectively provide data on the characteristics, treatment and outcomes of all type 1 diabetic patients aged less than 19 years old who have given informed consent.
- Personal Data Categories
-
Age Gender Weight Health History Height Residency Nationality Ethnicity Family Structure Parent
- Provenance
-
- IQECAD uses the so-called audit-feedback method to monitor quality of care and support healthcare providers in improving quality of care. Periodically, recognized centres are invited to participate in the IQECAD audit.
- Landing Pages
- Documentation
Temporal Information
- Temporal Coverage
-
Start
- Update Frequency
- BIENNIAL
- Metadata Dates
-
Issued:Modified:
Spatial Information
- Geographic Coverage
-
- BE
- NUTS Codes
-
http://data.europa.eu/nuts/code/BE
Additional Information
- Dataset Types
-
Personal Data
- Applicable Legislation
- Legal Basis
-
-
13/093 (IKEKAD) 22-10-2013, laatst gewijzigd op 3 december 2019
-
- HDAB
- Contact Points
-
-
Sciensano IQECAD teamSciensano
-
- Conforms To
- Related Resources
- Structured Identifiers
-
- https://fair.healthdata.be/dataset/3bde02e0-3c50-4cd7-aaf1-718293a70525
- https://www.healthinformationportal.eu/health-information-sources/initiative-quality-improvement-and-epidemiology-among-children-and
- https://docs.healthdata.be/
- https://catalogues.ema.europa.eu/node/4026/administrative-details
- https://sciensano.healthdataportal.eu:443/dataset/521e19c2-33dd-49bd-8817-48f62c580c47
- http://10.5.8.138:8080/dataset/3472caaf-17c9-40b3-b22f-fd15ce8570f8
- https://intranet-fdp.sciensano.be/dataset/5fb4c4d9-23a6-420e-a04f-d24dc83c4eab
Qualified Relations 1
| Role | Relation |
|---|---|
| Related - Identifies a related resource. | https://www.sciensano.be/en/projects/initiative-quality-improvement-and-epidemiology-diabetes |
Distributions & Resources
https://www.hda.belgium.be/en/data_request
Type of data: pseudonymised individual data. Data are not publicly accessible. Specific data (analyses) are provided upon request. An anonymised data set can be shared after a data request is made and it is discussed with a group of experts.
https://docs.healthdata.be/documentation/initiative-quality-improvement-and-epidemiology-children-and-adolescents-diabetes-9
https://docs.healthdata.be/HDBP0009/DCD