Data user

The TEHDAS document provides recommendations on how to engage citizens in the coming European Health Data Space. It is meant to represent the citizens’ points of view, as expressed in the Healthy Data consultation.

The HDA Academy video training module aims to contribute to an understanding of the sensitivities, perceptions, and values that citizens and patients have regarding the use of health data. The ultimate goal is to enable data professionals to understand how they can foster transparency and trust in a respectful manner when collecting, processing, and using data.

This patient involvement toolkit was developed within a transversal taskforce of the Joint Action on Networks of expertise in cancer (JANE).