The objective of ILI_NH is to signal and monitor start, duration and intensity of influenza-like illness or ILI (including COVID-19) waves/appearances among nursing homes (NH) residents to optimize and support provided health-care, -planning, -management and -policies. In addition, ILI_NH monitors locally circulating virus types/subtypes or lineages/sub-lineages and their relationship to global and regional patterns. We have an aggregated dataset on NH level with ILI-cases, ILI-related hospital admissions, and deaths in NH, for the whole season.
Clostridioides difficile infections (CDI) are a leading cause of diarrhea and pseudomembranous colitis in acute and chronic care settings. Due to the growing incidence and advancing hypervirulent strains of Clostridioides difficile infections (CDIs), the Belgian Infection Control Society (BICS), in collaboration with Sciensano, is organizing a national surveillance in hospitals to determine the incidence of CDIs in our country. Registration began on July 1, 2006.
The BNMDR project annually collects data from the 7 Belgian neuromuscular reference centers (NMRCs) to monitor the prevalence and course of 62 neuromuscular disease groups. It also supports the quality of care in the NMRCs through benchmarking and facilitates patient recruitment for clinical trials.
The BMR-RBM was started in 1999 as a scientific project initiated by the Medical Committee of the CF-patient organisation (BVSM-ABLM) and the 7 CF-reference centres in Belgium collecting data of 1998. It was coordinated by the Vrije Universiteit Brussel (VUB). The main sponsor was the CF-Patient organisation, the cosponsor was the Fund Alfonse and Jean Forton of the King Baudouin Foundation. The VUB sponsored the overheads. After 5 years the scientific project came to an end and new sponsors were contacted.
The Central Registry of Rare Diseases (CRRD) is a national database containing a minimal, pseudonymised, cross-sectional dataset on patients who have consulted an expert centre in Belgium for a rare disease. The registry includes patients with a confirmed rare disease diagnosis, as well as patients for whom all reasonable diagnostic efforts by rare disease experts, using state-of-the-art methods and available diagnostic capabilities, did not result in a conclusive diagnosis of a clinically recognised condition.
Bleeding disorders are conditions in which the blood does not clot properly due to a problem in the blood coagulation process. This may be caused by missing or reduced clotting factors or by platelets that do not function normally. As a result, people can experience frequent or severe bleeding, sometimes even without injury. The most common bleeding disorders are haemophilia A, haemophilia B, and von Willebrand disease. Symptoms can vary widely between people, from mild to severe. Without proper treatment, bleeding can lead to long-term complications, such as joint damage.
Diabetes is a burden for both patients and their parents who need to receive a specific education to properly manage the disease. Beside vascular complications, diabetes in youth is also linked with higher risk of diabetic ketoacidosis, severe episodes of hypoglycemia and comorbidity. Therefore management of diabetes in young patients should cover periodic assessment, attentive monitoring for glycemic control and screening of vascular complication and comorbidity. In Belgium, specific centres are recognized by the INAMI-RIZIV for the treatment of diabetes in youth.
One in four individuals with diabetes will develop diabetic foot ulcers. Without expert treatment, these ulcers will not heal and may result in lower-limb amputation. In Belgium, about 35 multidisciplinary centres are recognised by the INAMI-RIZIV for the treatment of these ulcers. Through regular data collections, the IQED-Foot project monitors quality of care in these centres and provides individualised feedback, helping the centres to improve their quality of care. The project is executed by Sciensano and governed by a group of national experts.
Grâce à des collectes régulières de données, le projet IQED surveille la qualité des soins dans une centaine de centres de diabétologie reconnus à travers la Belgique et fournit des commentaires personnalisés, aidant ainsi les centres à améliorer la qualité de leurs soins.
Through regular data collections, the IQED project monitors quality of care in about 100 recognised diabetes centres throughout Belgium and provides individualised feedback, helping the centres to improve their quality of care.
Belgian National Burden of Disease Study Estimates of the attributable burden of disease Our results build on the estimates of causes of death from the Belgian National Burden of Disease Study and apply comparative risk assessment to estimate the proportion of that burden due to risk factors. Population attributable fraction Based on the estimated level of exposure and the associated health risk, a population attributable fraction (PAF) is calculated. The PAF is the proportion of the disease burden that is caused by exposure to the risk factor.
